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His health “seemed to level out a little for a while. When he got back from the hospital, he once again dove into Ark, to take his mind off the pain. It “has remained with me as one of my worst ever memories,” he says. It was an emergency, so there was no sedation, and Vör was awake through the whole ordeal. The doctors performed an aspiration: they pierced his chest with a needle to suck out the air. He rushed to the hospital, where doctors told him he had suffered a spontaneous pneumothorax – one of his lungs had torn a hole, emptying nearly two litres of air into his chest cavity. Not long after Ark first released, Vör went to sleep one night, and woke up struggling to breathe. It might sound like a painful position to be in, and indeed Vör describes it as “a necessary evil that began to ratchet out of control.” And yet, when his health took a turn for the worse, he needed a distraction more than ever. “The game was designed to cost me time, and I had to think of new ways to become even more efficient to minimise the impact on my energy levels, as Crohn’s Disease is a fatigue-based illness.” Vör’s commitment to the game escalated again when developers Studio Wildcard nerfed stasis feeding, causing him to spend yet more time tending to his dinosaurs. I value my ascendant sword way too much for that.” “I wouldn’t ever risk being logged in for a long time whilst being AFK. At one point I had over 1,500, and they all needed to be fed.” Vör says he fed them all, every single day, “which, all told, has taken up hours and hours of my time.” Of his 8,600 hours, Vör estimates that he was actively playing for around 95% of it. “The number of dinosaurs I had spiralled out of control. “The more I gamed in Ark, the more I needed to maintain what I had achieved,” Vör says. Vör’s unique relationship with Ark began as a way to keep his mind off his pain, but game mechanics, perhaps inevitably, took over.
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It was the perfect distraction from the pain of the surgery and as such was a welcome relief, at first.” “I could pick and choose the pace at which I played, and the things I did. I could focus on trying to achieve something in the game, instead of the pain I was constantly in.” He did play other games on occasion, including Evolve, but ultimately it was only Ark that “seemed to give me what my brain needed. “Ark provided the right level of distraction. His first session was half a day in its PvP mode, which did not take – “there were trolls everywhere and so much aggression and competitiveness” – but in its PvE game, he found an important, even essential, coping mechanism. He took a chance on it the very first day it was released into Early Access. This was the horrible context in which Ark arrived in Vör’s life. Surgeons removed some of his colon and put him on a course of immunosuppressant drugs to control the inflammation in his gut – a necessary treatment, but one that made him more vulnerable to viruses and germs.
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Vör could not work, and spent most of his days bedbound.
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“My skin began literally falling off, and I got huge crevices and razor sharp sores, which meant that I simply could not walk for over six months.” It also gave him a form of psoriasis between his legs. He suffered many of the more common effects: anxiety, joint pain, back pain, overproduction of stomach acids, and above all, severe lack of energy – “What would be a simple task for someone without Crohn’s would be hugely draining for me,” he says. Each has their own journey,” Vör explains. “Crohn’s Disease affects many people, and in different ways.